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Childhood Cancer Data Initiative: Status Report
  • +5
  • Subhashini Jagu,
  • Elaine Mardis,
  • Mary Wedekind ,
  • Brigitte Widemann,
  • Rena K. Kingery,
  • Samantha L. Gonzalez,
  • John Shern,
  • Gregory Reaman
Subhashini Jagu
National Cancer Institute Center for Biomedical Informatics and Information Technology
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Elaine Mardis
Nationwide Children’s Hospital
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Mary Wedekind
National Cancer Institute Pediatric Oncology Branch
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Brigitte Widemann
National Cancer Institute Pediatric Oncology Branch
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Rena K. Kingery
Publicis Sapient
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Samantha L. Gonzalez
Publicis Sapient
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John Shern
National Cancer Institute Pediatric Oncology Branch
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Gregory Reaman
National Cancer Institute Division of Cancer Treatment and Diagnosis

Corresponding Author:[email protected]

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Abstract

In March 2023, over 800 researchers, clinicians, patients, survivors, and advocates from the pediatric oncology community met to discuss the progress, plans, and future priorities of the National Cancer Institute’s Childhood Cancer Data Initiative. We present here the status of the initiative’s efforts in building its data ecosystem to provide access to childhood cancer data; updates on the Molecular Characterization Initiative; plans for implementing a Coordinated National Initiative for Rare Cancers in Children and Young Adults; and efforts to establish a framework for computable consent.
24 Aug 2023Submission Checks Completed
24 Aug 2023Assigned to Editor
24 Aug 2023Submitted to Pediatric Blood & Cancer
07 Sep 2023Review(s) Completed, Editorial Evaluation Pending
07 Sep 2023Reviewer(s) Assigned
24 Sep 2023Editorial Decision: Revise Minor
16 Oct 2023Review(s) Completed, Editorial Evaluation Pending
16 Oct 2023Editorial Decision: Accept