References
  1. Beek P, Groenendaal F, Broeders L, Dijk PH, Dijkman KP, van den Dungen FAM, et al. Survival and causes of death in extremely preterm infants in the Netherlands. Arch Dis Child Fetal Neonatal Ed . 2020.
  2. Domellöf M, Jonsson B. The Swedish Approach to Management of Extreme Prematurity at the Borderline of Viability: A Historical and Ethical Perspective. Pediatr. 2018.
  3. Verhagen EAA. Why Do Neonatologists in Scandinavian Countries and the Netherlands Make Life-and-death Decisions So Different?Pediatr. 2018;142:S585.
  4. Guillén U, Weiss EM, Munson D, Maton P, Jefferies A, Norman M, et al. Guidelines for the management of extremely premature deliveries: a systematic review. Pediatr. 2015;136(2): 343-350.
  5. Geurtzen R, van Heijst A, Draaisma J, Ouwerkerk L, Scheepers H, Hogeveen M, et al. Prenatal counseling in extreme prematurity - Insight into preferences from experienced parents. Patient Educ Couns . 2019;102(8):1541-9.
  6. Geurtzen R, van Heijst A, Draaisma J, Ouwerkerk L, Scheepers H, Woiski M, et al. Professionals’ preferences in prenatal counseling at the limits of viability: a nationwide qualitative Dutch study. Eur J Pediatr . 2017;176(8):1107-19.
  7. Stokes TA, Watson K. Reply to Govande, et al. Prenatal counseling beyond the threshold of viability. J Perinatol.2013;33(10):823.
  8. Geurtzen R, van Heijst AFJ, Babarao S, Molloy E, Draaisma JMT, Hogeveen M. Practices in antenatal counseling for extremely premature infants amongst European trainees. J Matern Fetal Neonatal Med . 2016;29(24):3956-9.
  9. Mehrotra A, Lagatta J, Simpson P, Kim UO, Nugent M, Basir MA. Variations among US hospitals in counseling practices regarding prematurely born infants. J Perinatol. 2013;33(7):509-513.
  10. Munn, Z, Peters MDJ, Stern C, Tufanaru C, McArthur A, Aromataris E. Systematic review or scoping review? Guidance for authors when choosing between a systematic or scoping review approach. BMC Med Res Methodol.  2018;18:143.
  11. Levac D, Colquhoun H, O’Brien KK. Scoping studies: advancing the methodology. Implementation Science. 2010;5:69.
  12. Arksey H and O’Malley L. Scoping studies: Towards a Methodological Framework. Int J Soc Res Methodol. 2005;8:19-32.
  13. Tricco AC, Lillie E, Zarin W, O’Brien KK, Colquhoun K, Levac D, et al. PRISMA Extension for Scoping Reviews (PRISMA-ScR): Checklist and Explanation. Ann Intern Med . 2018;169:467-73.
  14. Martinez AM, Weiss E, Partridge JC, Freeman H, Kilpatrick S. Management of extremely low birth weight infants: perceptions of viability and parental counseling practices. Obstet Gynecol.1998;92:520-24.
  15. Munro M, Partridge JC, Martinez AM. Antenatal counseling, resuscitation practices and attitudes among Australian neonatologists towards life support in extreme prematurity. Aust N Z J Obstet Gynaecol. 2001;41(3):275.
  16. Griswold KJ, Fanaroff JM. An evidence-based overview of prenatal consultation with a focus on infants born at the limits of viability.Pediatr . 2010;125(4):e931-7.
  17. Janvier A, Barrington KJ. The ethics of neonatal resuscitation at the margins of viability: informed consent and outcomes. J Pediatr.2005;147(5):532-536.
  18. Haward MF, Gaucher N, Payot A, Robson K, Janvier A. Personalized Decision-making: Practical Recommendations for Antenatal Counseling for Fragile Neonates. Clin Perinatol . 2017;44(2):429-45.
  19. Janvier A, Barrington K, Farlow B. Communication with parents concerning witholding or withdrawing of life-sustaining interventions in neonatology. Semin Perinatol. 2014;38(1):38-46.
  20. Staub K, Baardsnes J, Hébert N, Hébert M, Newell S, Pearce R. Our child is not just a gestational age. A first-hand account of what parents want and need to know before premature birth. Acta Paediatr Int J Paediatr . 2014;103(10):1035-8.
  21. Edmonds BT, McKenzie F, Panoch J, Litwiller A, DiCorcia MJ. Evaluating shared decision-making in periviable counseling using objective structured clinical examinations. J Perinatol. 2019;39:857-65.
  22. Bastek TK, Richardson DK, Zupancic JA, Burns JP. Prenatal consultation practices at the border of viability: a regional survey.Pediatr. 2005;116(2):407-13.
  23. Geurtzen R, Van Heijst A, Hermens R, Scheepers H, Woiski M, Draaisma J, et al.  Preferred prenatal counselling at the limits of viability: a survey among Dutch perinatal professionals. BMC Pregnancy Childbirth  2018;18(7). https://doi.org/10.1186/s12884-017-1644-6.
  24. Zupancic JAF, Kirpalani H, Barrett J, Gafni A, Streiner D, Beecroft ML, et al. Characterising doctor-parent communication in counseling for impending preterm delivery. Arch Dis Child Fetal Neonatal Ed . 2002;87(2):F113-F7.
  25. Ruthford E, Ruthford M, Hudak ML. Parent-physician partnership at the edge of viability. Pediatr. 2017;139(4).
  26. Bohnhorst B, Ahl T, Peter C, Pirr S. Parents’ Prenatal, Onward, and Postdischarge Experiences in Case of Extreme Prematurity: When to Set the Course for a Trusting Relationship between Parents and Medical Staff. Am J Perinatol . 2015;32(13):1191-7.
  27. Kharrat A, Moore GP, Beckett S, Nicholls SG, Sampson M, Daboval T. Antenatal consultations at extreme prematurity: a systematic review of parent communication needs. J Pediatr. 2018.
  28. Shapiro N, Wachtel EV, Bailey SM, Espiritu MM. Implicit Physician Biases in Periviability Counseling. J Pediatr.2018;197:109-115.e1.
  29. Edmonds BT, McKenzie R, Fadel WF, Matthias MS, Salyers MP, Barnato AE, et al. Using simulation to assess the influence of race and insurer on shared decision-making in periviable counseling. Simul Healthc.2014;9(6):353-59.
  30. Kunkel MD, Downs SM, Edmonds BT. Influence of Maternal Factors in Neonatologists’ Counseling for Periviable Pregnancies. Am J Perinatol . 2017;34(8):787-94.
  31. Harrison H. The offer they can’t refuse: parents and perinatal treatment decisions. Semin Fetal Neonatal Med . 2008;13(5):329-34.
  32. Edmonds BT, McKenzie F, Panoch JE, Barnato AE, Frankel RM. Comparing obstetricians’ and neonatologists’ approaches to periviable counseling. J Perinatol . 2015;35(5):344-8.
  33. Boss RD, Henderson CM, Wilfond BS. Decisions regarding resuscitation of extremely premature infants: should social context matter?Jama Pediatr. 2015;169(6):521-2.
  34. Janvier A, Lorenz JM, Lantos JD. Antenatal counseling for parents facing an extremely preterm birth: Limitations of the medical evidence. Acta Paediatr. 2012;101(8):800-4.
  35. Pedrini L, Prefumo F, Frusca T, Frusca T, Ghilardi A. Counseling about the Risk of Preterm Delivery: A Systematic Review. BioMed Res Int. 2017.
  36. Grobman WA, Kavanaugh K, Moro T, DeRegnier R, Savage T. Providing advice to parents for women at acutely high risk of periviable delivery. Obstet Gynecol . 2010;115(5):904-9.
  37. Haward MF, Janvier A, Lorenz JM, Fischhoff B. Counseling parents at risk of delivery of an extremely premature infant: Differing strategies. AJOB Empir Bioeth . 2017;8(4):243-52.
  38. Roscigno CI, Savage TA, Kavanaugh K, Moro TT, Kilpatrick SJ, Strassner HT, et al. Divergent views of hope influencing communication between parents and hospital providers. Qual Health Res.2012;22:1232-46.
  39. Tomlinson MW, Kaempf JW, Ferguson LA, Stewart VT. Caring for the pregnant woman presenting at periviable gestation: acknowledging the ambiguity and uncertainty. Am J Obstet Gynecol.2010;202(6):529.e1-529.e6.
  40. Edmonds BT, Krasny S, Srinivas S, Shea J. Obstetric decision-making and counseling at the limits of viability. AJOG . 2012;206:248.e1-5.
  41. Stiggelbout AM, Pieterse AH, De Haes JC. Shared decision-making: concepts, evidence, and practice. Patient Educ Couns 2015;98(10):1172-1179.
  42. Geurtzen R, van Heijst AFJ, Draaisma JMT, Kuijpers LJMK, Woiski M, Scheepers HCJ, et al. Development of Nationwide  Recommendations to Support Prenatal Counseling in Extreme Prematurity. Pediatrics . 2019 Jun;143(6):e20183253.
  43. Boss RD, Donohue PK, Roter DL, Larson SM, Arnold RM. “This is a decision you have to make”: using simulation to study prenatal counseling. Simul Healthc. 2012;7(4):207-12.
  44. Drago MJ, Guillén Ú, Schiaratura M, Batza J, Zygmunt A, Mowes A, et al. Constructing a Culturally Informed Spanish Decision-Aid to Counsel Latino Parents Facing Imminent Extreme Premature Delivery.Maternal and Child Health Journal. 2018;22:950-57.
  45. Guillén Ú, Mackley A, Laventhal N, Kukora S, Christ L, Derrick M, et al. Evaluating the Use of a Decision Aid for Parents Facing Extremely Premature Delivery: A Randomized Trial. J Pediatr.2019;209:52-60.
  46. Kim UO, Basir MA. Informing and educating parents about the risks and outcomes of prematurity. Clinics in Perinatology. 2014.
  47. Lantos JD. What is the Purpose of Antenatal Counseling? J Pediatr. 2018;196:8-10.
  48. Moore GP, Lemyre B, Daboval T, Ding S, Dunn S, Akiki S, et al. Field testing of decision coaching with a decision aid for parents facing extreme prematurity. J Perinatol. 2017;37:728-34.
  49. Myers P, Andrews B, Meadow W. Opportunities and difficulties for counseling at the margins of viability. Semin Fetal Neonatal Med . 2018;23(1):30-4.
  50. Srinivas SK. Periviable births: Communication and counseling before delivery. Semin Perinatol . 2013;37(6):426-30.
  51. Yee WH, Sauve R. What information do parents want from the antenatal consultation? Paediatr Child Health. 2007;12:191-6.
  52. Rau NM, Basir MA, Flynn KE. Parental understanding of crucial medical jargon used in prenatal prematurity counseling. BMC Med Inform Decis Mak . 2020;20(1):169.
  53. Georgescu A, Muthusamy A, Basir MA. The 30-Minute Sprint: Recognizing Intrapartum Prematurity Counseling Limitations. J Pediatr Intensive Care . 2021.
  54. Fish R, Weber A, Crowley M, March M, Thompson C, Voos K. Early antenatal counseling in the outpatient setting for high-risk pregnancies: a randomized control trial. J Perinatol . 2021.
  55. Mardian E, Bucking S, Dunn S, Lemyre B, Daboval T, Moore GP. Evaluating parental perceptions of written handbooks provided during shared decision-making with parents anticipating extremely preterm birth. J Matern - Fetal Neonatal Med . 2020.
  56. Arnolds M, Laventhal N. Perinatal Counseling at the Margin of Gestational Viability: Where We’ve Been, Where We’re Going, and How to Navigate a Path Forward. J Pediatr . 2021.
  57. Abusalah Z. Counselling parents of premature babies. a novel approach.Archives of Disease in Childhood . 2020;99(24).
  58. Tysdahl C, Tysdahl T, Wendt J, Wendt L, Feltman DM. Helping Families Navigate Center Variability in Antenatal Counseling for Extremely Early Births. Pediatrics . 2019;144(5):e20191625.
  59. Reed R, Grossman T, Askin G, Gerber LM, Kasdorf E. Joint periviability counseling between neonatology and obstetrics is a rare occurrence.J Perinatol . 2020;40(12):1789-96. doi: 10.1038/s41372-020-00796-8.
  60. Tucker Edmonds B, Savage TA, Kimura RE, Kilpatrick JS, Kuppermann M, Grobman W, et al. Prospective parents’ perspectives on antenatal decision-making for the anticipated birth of a periviable infant. J Matern Fetal Neonatal Med. 2019;32(5):820-825. doi:10.1080/14767058.2017.1393066