Data Extraction
Key data were extracted from included studies by three research team
members. These data
included geographical location, disease classification, and ethnic and
ancestral origin. Research
team members grouped disease classification into the following
categories: cancer,
cardiovascular disease; diabetes, DNA/blood sampling, epidemiology,
genetic/genomic testing,
health-related, human immunodeficiency virus (HIV), medical, and
various. See Table 3.
Instruments were developed to assess accuracy and validity of
quantitative data available in
studies and quality review scores were assigned to each study based on
consistency of reported
elements to aid the interpretation of data collection.