Data Extraction
Key data were extracted from included studies by three research team members. These data
included geographical location, disease classification, and ethnic and ancestral origin. Research
team members grouped disease classification into the following categories: cancer,
cardiovascular disease; diabetes, DNA/blood sampling, epidemiology, genetic/genomic testing,
health-related, human immunodeficiency virus (HIV), medical, and various. See Table 3.
Instruments were developed to assess accuracy and validity of quantitative data available in
studies and quality review scores were assigned to each study based on consistency of reported
elements to aid the interpretation of data collection.