Study Design and Purpose
The studies included in this review varied in design and purpose.
Research was carried out between 1998 and 2017 and conducted in Canada,
Nigeria, the United Kingdom, and the United States and assessment
conducted ranged in duration from one month to five years and
assessments lasted between 15 and 120 minutes. Twenty-five studies
engaged qualitative methods (comprising in-person, telephonic, and focus
group interviews, including adult and sibling pairs), seven studies
engaged quantitative methods (comprising questionnaires and surveys),
and six studies engaged mixed-methods. The purpose of the interventions
examined barriers and facilitators to participate in genomic-related
health research.