Study Design and Purpose
The studies included in this review varied in design and purpose. Research was carried out between 1998 and 2017 and conducted in Canada, Nigeria, the United Kingdom, and the United States and assessment conducted ranged in duration from one month to five years and assessments lasted between 15 and 120 minutes. Twenty-five studies engaged qualitative methods (comprising in-person, telephonic, and focus group interviews, including adult and sibling pairs), seven studies engaged quantitative methods (comprising questionnaires and surveys), and six studies engaged mixed-methods. The purpose of the interventions examined barriers and facilitators to participate in genomic-related health research.