References
The data that support the findings of this study are available on
request from the corresponding author. The data are not publicly
available due to privacy or ethical restrictions.
1. Kiernan MC, Vucic S, Cheah BC, et al. Amyotrophic lateral sclerosis.The Lancet . 2011;377(9769):942-955.
doi:10.1016/S0140-6736(10)61156-7
2. Longinetti E, Fang F. Epidemiology of amyotrophic lateral sclerosis:
an update of recent literature. Curr Opin Neurol .
2019;32(5):771-776. doi:10.1097/WCO.0000000000000730
3. Zarei S, Carr K, Reiley L, et al. A comprehensive review of
amyotrophic lateral sclerosis. Surg Neurol Int . 2015;6.
doi:10.4103/2152-7806.169561
4. Tsunoda K, Takazawa M, Chong T, Morita Y. Slow, slurred speech as an
initial complaint in amyotrophic lateral sclerosis. Auris Nasus
Larynx . 2019;46(2):193-195. doi:10.1016/j.anl.2018.07.007
5. Hardiman O, Al-Chalabi A, Chio A, et al. Amyotrophic lateral
sclerosis. Nat Rev Dis Primer . 2017;3(1):1-19.
doi:10.1038/nrdp.2017.71
6. Ruoppolo G, Schettino I, Frasca V, et al. Dysphagia in amyotrophic
lateral sclerosis: prevalence and clinical findings. Acta Neurol
Scand . 2013;128(6):397-401. doi:10.1111/ane.12136
7. Spittel S, Maier A, Kettemann D, et al. Non-invasive and tracheostomy
invasive ventilation in amyotrophic lateral sclerosis: Utilization and
survival rates in a cohort study over 12 years in Germany. Eur J
Neurol . 2021;28(4):1160-1171. doi:https://doi.org/10.1111/ene.14647
8. Kotanen P, Kreivi HR, Vainionpää A, Laaksovirta H, Brander P, Siirala
W. Home invasive mechanical ventilation in Finland in 2015–2019.ERJ Open Res . 2020;6(4). doi:10.1183/23120541.00223-2020
9. Siirala W, Vainionpää A, Kainu A, Korpela J, Olkkola K, Aantaa R.
Prevalence of life-supporting prolonged invasive ventilation support in
Finland. Duodecim Laaketieteellinen Aikakauskirja .
2017;133(7):675-682.
10. Swinnen B, Robberecht W. The phenotypic variability of amyotrophic
lateral sclerosis. Nat Rev Neurol . 2014;10(11):661-670.
doi:10.1038/nrneurol.2014.184
11. Brooks BR, Miller RG, Swash M, Munsat TL, World Federation of
Neurology Research Group on Motor Neuron Diseases. El Escorial
revisited: revised criteria for the diagnosis of amyotrophic lateral
sclerosis. Amyotroph Lateral Scler Mot Neuron Disord Off Publ
World Fed Neurol Res Group Mot Neuron Dis . 2000;1(5):293-299.
doi:10.1080/146608200300079536
12. Turner MR, Scaber J, Goodfellow JA, Lord ME, Marsden R, Talbot K.
The diagnostic pathway and prognosis in bulbar-onset amyotrophic lateral
sclerosis. J Neurol Sci . 2010;294(1):81-85.
doi:10.1016/j.jns.2010.03.028
13. Chen A, Garrett CG. Otolaryngologic presentations of amyotrophic
lateral sclerosis. Otolaryngol Neck Surg . 2005;132(3):500-504.
doi:10.1016/j.otohns.2004.09.092
14. Andersen PM, Borasio GD, Dengler R, et al. Good practice in the
management of amyotrophic lateral sclerosis: Clinical guidelines. An
evidence‐based review with good practice points. EALSC Working Group.Amyotroph Lateral Scler . 2007;8(4):195-213.
doi:10.1080/17482960701262376
15. Chiò A. ISIS Survey: an international study on the diagnostic
process and its implications in amyotrophic lateral sclerosis. J
Neurol . 1999;246(S3):III1-III5. doi:10.1007/BF03161081