Recruitment and Consent
Participants were recruited from the outpatient pediatric and medical
oncology clinics over a 6-month period. AYAs age 15-25 (inclusive) were
eligible if they had undergone treatment for cancer in the past two
years, were not currently being treated for a recurrence or progression
of their cancer, and spoke English or Spanish; caregivers of the AYAs
were eligible to participate if they spoke English or Spanish. We
identified potential participants from an electronic health
record-generated report and purposively sampled28,29across language and role (AYA, caregiver). Potential participants were
mailed a recruitment letter to introduce the study. For those who did
not opt out of future contact, the study team, which included bilingual
(English and Spanish) research assistants, followed up to determine
interest in participating in a one-time interview. Interested
participants were consented remotely, and an IRB-approved information
sheet was sent via email or text.30 We requested that
interviews be conducted individually. Participants were each sent a $50
gift card after interview completion. All study procedures were reviewed
and approved by our Institutional Review Board (AAAT8368).