Results:
The survey was completed by 46/157 (29%) parents and 36/105 (34%)
adults with CF. Few parents (22%) and adults (17%) were willing to
discuss most or all specific ACEs, more were willing to disclose the
number of ACEs experienced in a category (57% parents, 47% adults),
and the majority were willing to participate in anonymous research about
ACEs (76% parents, 67% adults). Most parents (63%) and adults (50%)
would prefer to have ACEs screened separately from their CF appointment,
and most parents (63%) and adults (56%) wanted to learn more about
ACEs from a member of their care team.