Pediatric CF Parent/Guardian Survey:
The survey was sent to parents/guardians of patients seen in the
pediatric CF program with instruction that the survey was to be filled
out by a guardian, even if their child with CF was older than 18 years.
In the case of multiple children with CF, each parent/guardian was asked
to fill out the survey with their oldest child with CF in mind. The ACE
questionnaire displayed was from the Center for Youth Wellness (CYW)
(Supplemental Table 2).18 Preferences about future
participation in ACE screening and research were asked after both CYW
Section 1 and 2.