Demographics
The majority of the caregivers were single (48.3%), female (67%), African American (83.3%), and reported to be working in ‘blue collar’ occupations (Table 1). The average SES score (Entwisle & Astone, 1994) for the caregivers (N = 60) was 29.7 (e.g., hairdressers, health aides, etc.) with a range from 15.0 (i.e., unemployed) to 73.2 (i.e., registered nurse). The average SES score for the caregivers’ spouses (N = 38) was 35.98 with a range from 15.0 (i.e., unemployed) to 76.31 (i.e., computer programmers).

Recruitment and Retention

We were given permission by the medical teams to approach 77 caregivers of children with SCD and 72 (94%) consented to participate (Figure 1). After consenting 72 caregivers, 60 completed T1 assessments (83%). Of the 72 caregivers who consented, 26 (36%) completed 0 sessions; 16 participants (22%) completed 1-5 sessions; and 35 participants (48.6%) completed 6+ sessions. T2 data were provided by 39 participants (54.2%) and 41 participants completed T3 (56.9%). Of note, there were no statistically significant differences in recruitment and retention between the two study sites.

Problem-Solving Skills

SPSI-R scores consistently improved over time (Table 2). Data show that standard scores on the SPSI-R and PPO, NPO, RPS, ICS, and AS subscales were all within one standard deviation (SD = 15) of the mean (M = 100) based on normative data (Table 2) at all assessment points30.