Conclusions
The COVID-19 pandemic is having a profound impact on HNC patients, creating tremendous anxiety and uncertainty for many individuals undergoing treatment or surveillance for their disease. With the current changes occurring in healthcare, the role of HNC advocacy organizations is becoming increasingly significant, as these groups are being turned to for information and support. Despite numerous challenges with program funding and implementation, these groups continue to find ways to offer services to their communities. Further work is necessary for these organizations to learn about the evolving needs of those they serve in order to best refine programs to support them in the future.